Share your experience of living with gastroparesis - it can be therapeutic for you as well as others who suffer. Here is a sampling of stories by people affected with gastroparesis. Or view more stories and share your own. I was told the end of October, beginning of November that I have gastroparesis. The doctors do not have any idea how I got this.
Gastroparesis, also called delayed gastric emptying, is a disorder that slows or stops the movement of food from your stomach to your small intestine, even though there is no blockage in the stomach or intestines.
The symptoms of gastroparesis may include feeling full shortly after starting a meal, feeling full long after eating a meal, nausea, and vomiting. Diabetes is the most common known cause of gastroparesis. Doctors diagnose gastroparesis based on your medical history, a physical exam, symptoms, and medical tests, such as tests to measure stomach emptying.
He explained very few details and symptoms about it, so I began doing my own research. I just listened and tried my hardest to familiarize myself with his condition.
Gastroparesis, also called delayed gastric emptying, is a disorder that slows or stops the movement of food from your stomach to your small intestine, even though there is . Allie recalls what she would tell a date about gastroparesis, a stomach paralysis condition, and provides advice for women who do not know how much information to share with their romantic partners. One of the hardest things is trying to be honest with the people in your life and especially dating, when you have this disease, and as far as friends and family the best thing that you can .
He was hospitalized for about four days after excruciating pain and severe nausea. I found out by his mother, who contacted me on the first day he was there.
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The next day I went to see him. He was not thrilled by any means, however I saw a glimmer of happiness in his face when he saw it was me walking through the hospital room doorway.
As he laid there I kissed him on the forehead and asked him how he felt. So I began to talk about my day as if it were any other. He opened his eyes and began to reciprocate the conversation.
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I guess I want to say that I saw the light shining in on him that moment. That time he was in the hospital would be the first of many. That moment in time was definitely not what I was used to. It hurts my heart greatly to witness that every time. I used to think there was nothing I could do. DuringI began to feel terrible, and had unrelenting intense epigastric pain after eating.
Since it was not really functioning, it was recommended that I have it removed. I did, and felt better for a while.
The symptoms returned about a month later, but were a lot worse. I was referred to another specialist 2 hours away, and was diagnosed with Sphincter of Oddi dysfunction and had a biliary sphincterotomy. However, I did not have any significant improvement after the surgery.
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My doctor at the tertiary facility pretty much gave up on me and finally referred me back to my internist and local GI doctor. At that time, I was so sick that I could only eat soup and baby food - and even that was painful to eat.
No one could figure out what was wrong. Ina local GI doctor referred me to a nationally renowned facility, and I received a call from the facility stating that a doctor had reviewed my case and thought there was nothing they could do for me! I eventually got an appointment with another facility 14 hours away. I underwent a few tests, and was diagnosed with moderate idiopathic gastroparesis.
The GI fellow that broke the news to me prescribed Reglan, told me to eat a balanced diet, read about the disease on the internet, and figure out what to eat by surfing the web.
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He then left the room, and my husband and I got into the car and drove 14 hours back home. Still frustrated, because I thought something else may be wrong, I drove back 14 hours for a follow-up appointment.
I was told by the attending physician there that maybe I pulled a muscle, maybe I was just depressed, or just maybe I wanted attention.
That made me angry. I thought at one point that maybe I was losing my mind, but I had physical symptoms of pain, vomiting, and nausea - and there is no way I could be making up all of that!
I finally did my own research and found a list of the top motility clinics in the US. I decided that I wanted to get to the bottom of this I was tired of the run around I wanted some real answers from doctors that deal with these problems daily. I finally made a phone call to one of the most comprehensive motility clinics in the US and got an appointment rather quickly.
My husband and I traveled once again, hopeful for answers. All of the doctors that I had seen before did not really go into detail about gastroparesis - only that I should not be hurting like I do.
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They blew off my symptoms and thought I should feel normal. He did not sweep my problems under the rug or try to downplay them. We are actively trying to manage this situation. He actually gave me some dietary advice to follow.
I have had consultations with a dietician that knows about gastroparesis and how to manage it. At least now I feel like I have a toolbox of solutions to my problem.
Gastroparesis and dating. Close. 4. Posted by. u/molly_the_mezzo. 2 years ago. Archived. Gastroparesis and dating. How do people with severe gastroparesis navigate the dating world? Any tips? For example, when do you first bring it up? How do you deal with dinner dates? Etc., etc. 6 comments. share. A young man whose partner has gastroparesis, shares what his journey has been like in supporting a loved one with chronic illness. Scott became ill for the first time since we've been dating. He was hospitalized for about four days after excruciating pain and severe nausea. I found out by his mother, who contacted me on the first day he. The age-adjusted prevalence of definite gastroparesis was per , persons for men and 38 per , persons for women. Overall survival was significantly lower than for the age- and sex-matched general population. ETIOLOGY. Although multiple conditions have been associated with gastroparesis, the majority of cases are idiopathic.
It took me 5 years to get there, but I feel like I have finally made it! I am confident there are answers out there for you. It may take some time and effort to find all the answers, but you will find them.
It may take a long time to find a doctor that understands functional GI disorders, but he or she is out there, and has dedicated his or her life to help you. My prayer for you is to not become discouraged in your journey towards seeking help, and that you may find wellness and healing. I felt so touched by reading Kristen's story that I can't stop crying.
Living with Gastroparesis Resources Traveling Tips Prevention & Management Tips Personal Stories Get Involved Advocacy Support Research Meet GP Activists Gastroparesis Awareness Month Gastroparesis Awareness Month Recognized in the Senate Statement in the Record Recognizing Gastroparesis Awareness Month. Gastroparesis is a disorder that occurs when the stomach takes too long to empty food. This disorder leads to a variety of symptoms that can include nausea, vomiting, feeling easily full, and a. Gastroparesis is a condition in which food stays in your stomach for longer than it should. Learn more about gastroparesis causes, symptoms, complications, diagnosis, treatment, and diet changes.
I did not think there was another person feeling the same way I do. I have been diagnosed with gastroparesis, and I am also lactose intolerant. My main problem, besides nausea when I eat, is that I feel so bloated that I tend to isolate myself from others.
This is definitely affecting my marriage.
I feel sick, uncomfortable, unwanted and hopeless. The medication I'm taking is not doing anything for me, and the other options are either not yet approved to be sold in US or have too many side effects.
The only thing that keeps me going is that I want to have beautiful kids with my loving husband one day.
I love my hubby so much for understanding me and caring about me. Some day I will find the medication that will make me feel better.
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